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Patient and Carer Partnership Board

The Board works to ensure the patient and carer voice is integrated.
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Patient experience

We care about our patients experience.
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Velindre Voices

Working in partnership with our community is crucial.
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Volunteering

We welcome applications from people of all abilities.
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Opportunity:

The Serenity study is developing a shared - decision support tool to help people who have advanced cancer be involved in decisions about continuing or stopping blood thinning medication. The tool is for use on a mobile phone.

We would like to test the usability of an early prototype of the tool with volunteers in the south-east Wales area. We need up to 8 volunteers to meet with a researcher and be interviewed whilst looking through the tool on a mobile device that will be provided to you.

We are looking for people over the age of 18 who live in South East Wales and have knowledge about cancer and cancer services. The app is not ready for use with patients who have cancer and so we can only test it with people who do not currently have cancer.

Type:

 One to one testing and interview.

Date:

 To be agreed with interviewee.

Time:

 TBC

Location:

Interviewee’s choice

In Partnership with:

 Cardiff University

Impact:

 We will include your feedback in any improvements that are needed before the tool fully developed and is tested with patients with cancer.

Would you like to be involved?

 To register your interest and be sent more information about the study please click on the link or scan the QR code with your mobile phone to complete an expression of interest form in the poster attached to this email or contact Dr Michelle Edwards edwardsm28@cardiff.ac.uk and/or Lisa Miller, Head of Patient Engagement, Velindre Cancer Centre.

Registration Closing Date

  

Are you a patient, family member or carer affected by a cancer diagnosis?

Please complete this survey to help us understand the availability of support to help manage your concerns, feelings and emotions following a cancer diagnosis.

Who can take part?

  • Anyone affected by cancer in the last 3 years, including family members and carers
  • Living with cancer or receiving cancer treatment / surgery in Wales

Fill out this survey by the NHS Wales Cancer Network.

For more information, please e-mail PCC.Subgroup@wales.nhs.uk.